Allison Henry






Allison’s story, written by her parents:
Allison is an ex-30 weeker who is diagnosed with hydrocephalus, cerebral palsy, epilepsy and cortical vision impairment. She has had 31 brain surgeries since birth. Some surgeries included: shunt revisions, shunt infections, cranial vaults, chiari decompressions, and more. She spent 88 days in the NICU during the start of the pandemic and had 10 chest tubes placed. She currently has a g-tube to feed and has been catching up on her growth. Allison currently attends Lakeview school and receives, PT, speech, feeding, vision, aquatic, and OT. She is seen by GI, ENT, Pulm, Plastic Surgery, Neurosurgery, and Neurology on the regular (all with CHOP) as well as orthopedics for hip displasia. Allison uses many DME pieces such as: Gait Trainer, Stander, Adaptable wheelchair/stroller, Rifton Bath Chair, hinged AFOs, hand braces, and SPIO vest. Allison is the happiest miracle baby.
You can catch her smiling and giggling at her big sister (Lillian), singing along to Frozen, strolling around outside on beautiful days, being a mermaid in tbt pool, or snuggling in your arms. Allison’s smile melts everyone's heart.
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