The 6th Annual Bowling Fundraiser was a success!
We sold out all 26 lanes with 147 bowlers this year! We were able to invite Jacks Kids to bowl for free thanks to our lane sponsors! Jake Whitenight sang his heart out and moved us all. We honored Jacks Kid Angel, Hayley with prayer, song, and nice words spoken by Tim Rice.
Please email us to share the kids updates, milestones, prayer requests, etc
Sad to announce one of our Jack’s Kids gained her wings.
In Loving Memory of
Hayley Midland Filippini
Sep 11, 1998 – Dec 9, 2016 (Age 18)
Hayley passed peacefully at home surrounded by her family. Hayley’s shining and loving personality will be forever remembered and missed.
Quinn had his last Chemo treatment on December 9, 2016! Quinn will have his blood counts checked monthly for the first year and then every other month the second year and so on. “It was a long 3 years and 4 months of treatment”, says Mom. Quinn is enjoying 2nd grade and playing Recreation Basketball.
The Knapp Family has asked to express their thanks to Jack’s Kids and all the supporters for all the prayers and help while Quinn was on his way to health.
February 20, 2017, Alexander had open heart surgery to fix a leaky valve. After 5 days recovering in the hospital Alexander was well enough to go home.
To follow Alexander click the link below:
Team Alexander, Helping Heal A Hero’s Heart
Jake’s parents asked a Jack’s Kid committee member to join them when Jake received his new hearing aids. With the help of our supporters the Jacks Kids Organization was able to assist in the purchase. It was a pleasure to witness such amazement and gratitude that the Whitenight Family expressed. With Jake’s new hearing aids he was able to hear at a perfect level. The video is Jake’s experience receiving his new hearing aids which can be found below.
Jonathan Sherman~ Update from mom March 2017
Jonathan has had a few, particularly rough months starting right around the one-year anniversary of his brain surgeries. He has experienced several new neurological symptoms, which have kept him very busy with many different doctor’s appointments, evaluations and tests. He was diagnosed with Dyslexia, which led to additional testing revealing despite having 20/20 vision, there is a dis-connect with his brain and eyes requiring glasses for any up close work. He has also developed a significant tremor in his hands (Dysmetria) that makes school/homework a frustrating and time – consuming task for him. He has also had a lot of difficulty focusing and remembering details, as well as recalling his short–term memory. Many different specialists have evaluated him and noted a new discrepancy in his pupil size, with the right side being larger than the left at different times. This new symptom, as well as some newly noted eye rolling (previously diagnosed as a motor tic) and “spacing out” episodes, have led the doctors to suspect a possible diagnosis of Epilepsy. He is currently awaiting testing to rule seizures.
Billy had his MRI March 6, 2017. Unfortunately, results show that his tumor grew some again – it’s the second MRI in a row where this has happened since he has been off chemo. His oncologist brought Billy’s case to their tumor board on March 17th. The family will meet with the medical team this week to discuss any treatment options available at this point. The Biviano’s want to thank you for your love, continued support and prayers. #bravebilly Please continue the prayer chain and to get updates follow Brave Billy below.
Ben experienced another episode. He has had a rough past week of testing and a very high fever and severe pain. He is recovering now. The doctor gave them 2 options and and they will follow up in a month. The one is colchicine again at a much lower dose to see if he can tolerate it. The other is more experimental. Please keep him in your prayers for continued strength.
March 23, 2017 Ray received his first treatment of the new approved SMA drug. As quoted from a post from Ray’s website 3 months ago, “Today has been a much anticipated day for the entire SMA community. When we first learned what SMA was on March 30, 2009 and Googled it, we learned it is an incurable, terminal disease. No treatments. Nothing. But, we had hope. Well, today there is an FDA approved treatment. We do not know if it will help Ray, but we need to do some research on it and we need to pray it will help him.” Ray_Fantel_Press_Release_2017
Welcome our new Jack’s Kids Family
Jack’s Kids Committee will share individual Kids fundraiser events. Please email us your flyers to Jacks Kids
Dinner & Show Music and Comedy Night
All Proceeds Donated to Benefit Children with Special Needs
Tickets $45 Cash Bar
*National Award Winning Elvis Tribute Performer: Jim Barone
*Comedian, Magician & Ventriloquist:Gemini
Cocktail Party 6-7PM***Dinner 7-8PM***Show Starts 8PM
SAVE THE DATE!
Jack’s Kids 25th Annual Jack Gardner Softball Tournament
Saturday, July 8, 2017
Stay tuned for more information, team registration, volunteer opportunities, and sponsorship opportunities
We would like to take this opportunity to promote Steps-Together’s upcoming events. Just like Jack’s Kids, Steps Together is a 501(c)(3) nonprofit organization dedicated to supporting families facing a medical crisis. A very large portion of Steps-Together families are also Jacks Kids families.
Friday, April 28th, 2017
Renaissance Runs The Runway
Sunday, May 7th, 2017
100 Laps of Healing @ HHS Track
The following Jacks Kids will benefit:
Billy Biviano, Alexander Monto, Chloe Grace Viana, Quinn Knapp, Jackson Silva, Stevie Horvath, Ray Fantel,
Danny Garofalo, Charlotte Downey, Jonathan Sherman, Mackenzie Plick, Finn Stever, and Ben Falcone
Thank you for reading and following Jack’s Kids! #itsallaboutthekids